This symposium combines science, art, and music to give a voice to people affected by rare conditions, foster dialogue between research, clinical practice, and society, and strengthen the commitment of the CHOPS Rare Diseases Foundation to the development of new therapies. This will be the second international symposium on the topic organized by the Foundation, following the first one held on July 19–20, 2024, at the Children’s Hospital of Philadelphia. 

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Prof. Ian Krantz, Northwell Medical Center, New York

Prof. Valentina Massa, Department of Health Sciences, University of Milan

Dr. Neil Hackett, Weill Cornell Medicine, New York

Dr. Manuela Mallamaci, Fondazione CHOPS Malattie Rare ETS & Department of Physics and Chemistry, University of Palermo

Cool Cars for Kids Foundation

Patricia Weltin, Beyond the Diagnosis Art Exhibit

Lainey Moseley, Independent documentary filmmaker RARE